In the past I've blogged a bit about Ainsley's eyes but I thought today I'd actually show you. As time has gone on I've become much more open about the things we've gone through, both the good and the bad because I hope that Ainsley's blog helps others: either because they are going through something similar or because people are inspired by all she's been through, her strength and spirit. Perhaps sharing these photos will make it more clear why her eyes are the way they are. I'll have to warn you they are graphic.
Ainsley at 9 months of age, immediately before her 2nd cranial reconstruction, on 7/24/07. You can see a slight downward slant and her eyelids are a little droopy but not neither is too bad. At the time I actually thought perhaps her ptosis might get better after the reshaping of her forehead, which was bulging due to the craniosynostosis. I knew that her head shape would be different but I didn't expect her to look like a different person, mostly because of the change to her eyes. Sometimes I regret having the surgery but she needed it. The surgeons said that her brain "popped" when they opened her skull because it was under so much pressure due to the fusion of her sagital suture. Although sagital craniosynostosis is a surprisingly common condition her case was severe.
The scan of her skull before.You can see that her soft spot was larger than normal as the skull shape changed, trying to accommodate her growing brain as best it could. In addition you can see she was missing the larger wing of the sphenoid bone behind her eyes (which is practically unheard of ever) so the surgeon reconstructed that during the surgery as well otherwise her eyes would be resting against the dura. He was able to split some pieces of bone in 2 so he was able to do the entire surgery using her own bone.
The height of swelling which may have caused stretching of the muscle that lifts the eyelid.