Dec 3, 2010

We're Home Now

We had a bit of a rough night. I was surviving on less than 5 hours sleep and Ainsley kept waking crying every 10-20 minutes or so just when I'd fall asleep. She finally started to settle about 2:30 am but then we got a roommate at about 3:30 am. Then the doctors started showing up about 6:30.  I think she was mostly unhappy to be there so I pushed to get discharged as soon as possible. We had the paperwork complete and everything packed up by 10:30am.

The boots were filled and we were on our way. It felt great to get her back in the stroller and push her on out the doors! 

I wish I could say that made all the difference. I would be lying. She is miserable. Mostly I think because her eyes are swollen shut so she can't see. She HATES that! I think the oxycodone is enough for the pain. All the memories are coming back, and I'm remembering how hard it was and will be again until she can see. My recollection is it takes about a week. The problem is she cries if I leave her, even to get up for a minute. I'm not going to be able to sit in bed with her 24/7 for a week. And the crying isn't good for the swelling.

Her eyes are SO puffy, even more so than this morning as you can see in this picture I just took.
It doesn't look too bad in the picture but there isn't much more it could swell. I'm hoping we are at the peak now and it will start to get better rather than worse.

Little cutie. She could hear I was taking her picture and I think she was trying to smile. A+ for effort Ainsley after what you've been through.


  1. Hang in the Mommy! The pictures break my heart...poor honey. It looks so ouchie. Thanks for the update.

  2. Little Ainsley you are breaking my heart.

    I wish I could be there Susan helping you out with cuddles, cooking or just there.

    I can only imagine how crappy she must feel and probably not fully understanding why she all of a sudden woke up and her little eyes are swollen shut and in pain. Agh!!
    Ainsley Santa is going to be good to you for being such a champion.

    Phone me if needed Susan, I imagine you are emotionally exhausted.

    Hugs and all the love in the universe from me to you.

  3. I am a nursing student who found your blog after searching youtube for videos on trach care and g-tube feedings in preparation for a practical exam. I am also a mother, so when I watched your videos, I just fell in love with Ainsley and I am really impressed with the good care you have given her. Now I check into your blog periodically to see how all of you are doing. My daughter teases me and calls me a "stalker", but you are an inspiration to me. God bless you and your family and I'll be praying for Ainsley to heal quickly and for restoration of her vision. Kim Hartrich

  4. Those pictures hurt my heart. I hope the swelling has peaked so Ainsley can open her eyes soon. I hope you are able to get some rest too.


  5. I hope Santa is extra nice to Ainsley this year. Wishing that she feels better soon. And some rest for you.

  6. Aww, poor girl. I hope once the swelling is gone she will be feeling better. HUGS to you!!!