Apr 23, 2010


Ainsley has cerebellar hypoplasia, which means that the portion of our brain, the cerebellum, which processed motor function (movement) is impaired. Her particular form of cerebellar hypoplasia is rare, not quite meeting the standard malformations that are generally seen. This is a big part of why we are so unsure of a long term prognosis for Ainsley. Although, one thing we do know for sure is that everything she learns to do with her body takes an incredible amount of extra effort and practice before she can master the skill and when she does it usually looks a little different. A friend once said everything she does looks graceful. I think that's a nice way to put it.

Over the past month she's started clapping anytime she likes something or does something good. This has given her a lot of practice. Even though she's been clapping for a very long time yesterday was the first day I could actually HEAR the clap. A round of applause for Ainsley please, "Yea Ainsley!!!"


  1. Hey! Good news on the clapping, and I LOVE the new layout. Sorry I've been MIA from the comment section, but I'm still checking in and cheering you on all the time.

  2. Ahhh, it is nice to see her happy again! Great job on the clapping!