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About Me
- Susan
- I am Ainsley's mom and the author of this blog. I am also mom to Ainsley's big sister Evie and brother Adrian. Normal life seemed busy and challenging enough before Ainsley came around in 2006. Managing the care of a medically complex special needs child is something I never imaged yet together as a family somehow we do and life is good.
Top 10 Posts
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Lately the subject of a blenderized diet or homemade pureed formula has come up on the trach forum and we also have a friend from school... -
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Toward the end of having the spica cast Ainsley was READY to get out of it! She started lifting herself up in it and even pushed herself acr... -
Eating is such a seemingly simple thing it's really hard, I think, for people to understand how it is that some people can't do it... -
Ainsley 72 hours post-surgery. There is still a fair amount of swelling. Her lids are thick. That makes it difficult to judge the outcome ... -
We had a crummy night's sleep. Or at least I did. Steve slept on the couch so Ainsley could sleep in our bed. She has to sleep with her ... -
Well, not quite , but nearly. Hopefully. I was counting it up recently and since my 3 kids are about 3 years apart in age, and Ainsley ...
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During our many many months of speech therapy and watching Ainsley's every move for signs that she was understanding language I've n... -
It's hard to believe that exactly one year ago today we were doing this! In the trach world it's called your "decannive... -
Having 3 kids in 3 schools can be difficult to manage and by the end of the 2015-16 school year it became overwhelming. Ainsley had her ... -
All three kids went back to school today. It's always a bittersweet time. As a stay at home mom I am grateful to reclaim time to get thi...
My thoughts and prayers are with your family Susan.
ReplyDeleteAinsley is beautiful before the surgery and she will be beautiful after the surgery.
Hugs,
Lisa
Ugh. The waiting. I think I must have done 500 Sudoku games. I hope there's good tv at least??? What am I saying - there's never good tv at the hospital. I always feel the same way - she has no idea what's in store for her. So weird...
ReplyDeleteKnow we're here - thinking of you.
~Christy
Thinking about you guys! Glad you didn't get bumped, but sorry you will have such a long night. I hope everything goes well - keep us updated!
ReplyDeleteLuke didn't have his LTR today, just a nasal dilation. But he is doing well - just like with Ainsley nothing is ever simple with my kiddo. I posted all about it on his blog if you have time to look.
I've been waiting for an update all day. Glad things are finally underway.
ReplyDelete