Last week I was lamenting to a fellow SN mom that I am tired. Having 3 kids can be tiring period. Having a husband who comes home after homework, dinner and bedtime every night month after month doesn't help matters. And then there are Ainsley's ever present needs which are many: routine around the clock trach care, oral + g-tube feeding, assisting with toileting/dressing/teeth brushing/positioning, plus trying to squeeze in as much home "therapy" as possible every day with stretching/standing/balance/walking (all things gross motor), cutting, drawing and all things fine motor, oral exercises and eating, cognitive (colors, letters, numbers, vocab) and communication (oral/AAC/sign language) which I frequently cannot do as much as I'd like; not to mention all things medical research/scheduling/ordering/cleaning/stocking med supplies & equipment, attending appointments surgeries etc. etc. Then there is the fact that Ainsley's equipment alarms and she needs care (suctioning & repositioning) in the middle of the night and that has disrupted our sleep nearly every night of the last 6 years.
The mom I was talking to suggested taking Ainsley to a respite facility so we can go on a family vacation like to Disneyland (which I personally love but find exhausting). I think she missed the point. Getting away for a week still means coming back to all that. What I really dream of is a solo vacation. Really it's probably just a fantasy. My family means too much to me to leave them behind, and since we haven't been on a family vacation in a couple years (Steve's work schedule) it's not likely that I will be able to convince my husband that as a SAHM I deserve some PTO. I know I'm not alone in having these feelings. It doesn't mean I don't love my kids. That's why when I saw this this blog post today, called Parenting I Quit at Parenting. Illustrated with Crappy Pictures, laughed my head off. I'm posting it here just in case you need a laugh today too.
I also liked these posts:
What It Is Like To Not Sleep At Night (I wish she'd draw a special version just for us trach moms. Ainsley spent a lot of the night coughing last night.)
Toddler Diaper Changes (I'm so glad that Ainsley is finally toilet trained. After 12 years of kids in diapers I was getting tired of this game.)
Doctor Visits (This is especially challenging for our medically complex kiddos who are in and out of doctor offices and at real risk from getting sick.)
The Uppers & Downers of Parenting (or Coffee & wine) (I don't know if any SN moms can survive without caffeine.)
Actually every single post of hers I read was hilarious. I hope you find them funny too.