Ainsley can be a rascal when she's overly tired, as the following pictures show.
It's no easy effort for her.
She's so pleased with herself. And we are too. She's getting to be very independently minded.
Somehow she managed to stayed awake so the surgeon could see her eyes for the first time since the eyelid surgery.
Here you can kind of see that the hair of the brow is a bit lower than the actual brow bone (okay brow prosthetic). When she is relaxed and you lift the brow up a few millimeters it lines up nicely and her eyes appear more open. You just have to love that smile, I just wish we could see her eyes when she smiles.
Once again he said what an incredibly complex case Ainsley's is. Though primarily she had sagittal craniosynostosis things were very much complicated by the absence of her greater sphenoid wings. The fact that she has a weakness of the lid muscle in addition to the surgery that reshaped her forehead and replaced the sphenoid wings (It changed the shape of her eye orbits, her forehead shape, the position of the skin over the forehead, the position of the levator, the frontalis, the slant of her eyes as well as the possibility that there could be damage to the muscles from swelling.) makes it all rather difficult to sort out what the problem is and how to fix it, even for a highly experienced craniofacial surgeon and occuloplastic surgeon. Luckily I had my handy photos with me to show him the progression again and he was able to see (among other things) that the brow implants that I'd suggested did in fact help her which goes to illustrate that what he would typical expect to see is not necessarily the case with Ainsley. A picture being worth a thousand words and all that I think it's always better for them to rely on images rather than their memory of how she's looked along the way.
As for her head shape: He said that unless she develops vomiting, headaches and other signs of intracranial pressure they would not operate. So that's good. It is typical that the shape changes over time and wants to return to it's original shape and since her head size is almost mature it will most likely be okay. I was a bit concerned about the sudden change. So this was reassuring.
All this means that we will likely get through the summer without a surgery and that would be nice. I don't know about you but I am looking forward to summer!!!! Ainsley's last day of school is Friday. Evie & Adrian's is next Wednesday. If only we could get some sun.