Credit goes to my dear friend Lisa for giving me the inspiration and push to do this for Steve this year even though I really didn't have time. He IS a great dad. It takes a special man to parent a special child (+2). Thanks for all you do honey!
I am a very happy ten year old. I have learned to explore and navigate this world in my own special way. I've been through more in my short time than most people ever will in their entire life but that doesn't get me down. If I like you I just might flash you a smile that will melt your heart.
I am Ainsley's mom and the author of this blog. I am also mom to Ainsley's big sister Evie and brother Adrian. Normal life seemed busy and challenging enough before Ainsley came around in 2006. Managing the care of a medically complex special needs child is something I never imaged yet together as a family somehow we do and life is good.
Now days it seems everyone has a blog so perhaps sharing personal details of your life over the Internet no longer needs explanation, yet I will. Ainsley's blog was created in March 2008 in preparation for a medical trip to Cincinnati, OH. At that time many families like ours used services like CaringBridge to help friends and families stay up to date on the status child's health. Instead we chose the blog format and are so glad we did. In addition to being a way to share information with our friends and family it has served as a sort of diary of our experiences. There are many times that I refer back to it for information about a surgery or procedure, or forgotten details about something that happened or to just to simply find a date. Over the years I've had parents contact me to say that the blog has been helpful to them in one way or another and that means a lot to me. Like me, many parents of medically complex kids are looking for information on how best to help their child, especially in the early years. Sharing our stories helps.