Nov 17, 2010

CPAP Success!

Friday CPAP 30 second x 3 = 1 min 30 seconds with airflow on and cap.
Saturday 5 minutes on CPAP with cap while watching Nick Jr.
Sunday 10 minutes on CPAP with cap while watching Nick Jr.
Monday 15 minutes on CPAP with cap while watching Nick Jr.
Tuesday 25 minutes on CPAP with cap while watching Nick Jr.
Wednesday.....


CPAP with cap for 1 hour while SLEEPING!
Obstructive Sleep Apnea?......NONE

WOW! She did it. Did she like it? No. But it's one step closer to life without a trach. Her sats were a little low, so tomorrow I'll be checking with the doctor about bumping the airflow setting up to see if that brings her oxygen saturation level from 95 up to her normal of 98-100%. Also we need to decide if we are going to try to have her sleep with the CPAP on regularly for naps and/or bedtime. I feel bad about asking her to do this considering she still has a trach cannula in her airway and she only needs to use the CPAP to prepare her for using CPAP if/when she is able to have her trach removed, hopefully this spring.  I knew it would work but I also can't believe it. WOW!

5 comments:

  1. I have been following your blog for just a short time. Your strength and your daughter's courage are helping me cope with my daughter's own struggles. Thanks for sharing your incredible story.

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  2. Susan - this is amazing! I'm so excited for you and Ainsley! Yay!

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  3. WOOT!! WOOT!!
    Fist pump in the air, should we celebrate with some beer and clam. ( Serious try it, buy some Motts clamato juice make sure it's cold and pour it into a glass and then add your beer, 70 beer 30 clam mix.)

    Awesome news!!

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  4. AWEsome!!!!!! your such a rockstar mom Susan!! Hope you guys have a happy thanksgivig!!!
    wyndi

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