Daily Happiness Photos - Week 21
05/21 Meeting Trach Friends
During our trip to Cincinnati we got to meet some of the friends who we've met in Holland. We understand and support each other and that is invaluable. It's amazing when you meet someone face-to-face for the first time and feel like they are old friends.
While trying to make our way to the hospital a lady on the street said to go up the street and to the door past the chipmunks. ??? Okay. We really didn't know what that meant and boy were we surprised to find life-sized statues of the characters from Alvin and the Chipmunks. Even though Ainsley was afraid of them I was happy because I knew my other kids would love seeing pictures of these. One day Ainsley will enjoy seeing the pictures and hearing about how she was afraid of them. It will make a medical trip seem like it was a little more fun. I love how these Children's Hospitals try to make the hospital a fun place for kids. As a parent I find it helps distract me from the sorrow that is everywhere there.
05/23 Being Done
...For now. Having any sort of surgery or procedure planned means that it is hard to just "live your life". You are looking forward to "the day" kind of like the weeks before Christmas or the last day of school. You are on a "countdown". At the point this picture was taken were past the big stuff: the FEES, the chest CT and pulmonary appointment, the triple scope and meeting with all the doctors. It was a relief to be done, even though the news wasn't good and we did still have to stay overnight in the hospital for the impedance probe. I've spent much of the past 5 years on one countdown or another. Every time I'm glad to move on, always hoping it will get us one step closer to "done".
I love animals. I kind of hate that some have to spend their lives in "enclosures" for our entertainment. But I love that zoos exist and give us the opportunity to safely see and appreciate animals with our children. I was glad to be able to take Ainsley someplace fun after all she'd been through this week.
Traveling with a medically fragile child is tiring. I am so happy to be home. It is where I am happiest.
This walker will give Ainsley the support she needs to venture out into the world. It wasn't long ago she relied on the sling, now she's sturdy enough to be safe without it. Today she used her walker to go OUTSIDE. She navigated by herself onto the grass and up the hill to watch Evie paint. Then she navigated back down and onto the patio, across the bumpy bit that isn't paved, over the threshold and into the house, and turned around and DID IT AGAIN. BY HERSELF. This is why we bought this house. Accessibility.
05/27 Healthy Treats
Do your kids beg for dessert? I don't like my kids to get too many sweets but if they had their way they'd have dessert everyday. I found key lime yogurt at the grocery store and a new healthy dessert idea was born. "Pie in a Cup". It's fast and it's healthy. I think we are going to be having a lot of these around here.
Ainsley starts outside OT & PT this week. We have an appointment with her local ENT. I will be programming her new AAC device which I am SO excited about! I'll be thinking a lot about Ainsley's upcoming Frontalis Sling surgery, which is scheduled for 6/15. Steve will be settling into his new job in UI for the Halo game where they are expecting him to work 60 hours a week now that I'm home. I hope you have a good week whatever you are doing.