OMG are we tired. Ainsley's chest CT was this morning at 6:30. Wait was that today? Feels like days ago. Afterward we came back to the room and Ainsley had a nice nap. She needed it.
Earlier she was acting all crazy in that way kids do when they are over tired.
She was playing peek-a-boo in the closet.
We bought her a Magic Coloring Book at the gift shop yesterday. She was such a good girl for her FEES. She's had a blast coloring it today.
Later she asked to get it out of the suitcase and followed my step by step instructions to get it out.
After napping Ainsley is well rested and back to her smiley self. Having a blast with her new toy, dragging it everywhere.
The CT of her lungs looked better than they expected. Not perfect but good. Certainly not worse. We'll learn more tomorrow I'm sure.
The other thing he said that was very interesting is that Cincinnati does more airway surgeries in a year than THE ENTIRE REST OF THE COUNTRY COMBINED. WOW! So as I've been saying, if anyone can help us figure this out, this team is the one because they see more complex airways than anyone else.
But Ainsley's airway is complex. I have kind of a sickly feeling. I'm glad we came, but I'm just sensing we are going to come away confirming a lot of what we already knew. But that would be okay. Like in 2008, I just want to know I've done everything I can. After the scope they will give their impressions, but the way the process works is that the entire team meets to discuss their findings and summarizes that into a report and treatment plan. That could take weeks to get.
So we'll be admitted for a reflux test called an impedance probe afterward so I'll be staying with her at the hospital.
On a funny note. After dinner at the horrible cafeteria we headed back to the hotel. On our way we found The Chipmunks. I know Evie and Adrian would get a kick out of seeing these so I took the photo op. But Miss Ainsley thought they were real or something and was terrified!
Look at her trying to run away.
I did get this picture of Ainsley with Sheryl though that turned out great. Ainsley is such a sweetie she smiled when I asked her to, but you can tell by her legs that she was trying to keep as far away from Alvin as possible.
Stay tuned for tomorrow's news. Thanks for reading and caring.