Ainsley is now seventeen years old! She is one of a kind and has navigated this world in her own special way. She's been through more than most people ever will in their entire life but that doesn't get her down. If she likes you she just might flash you a smile that will melt your heart.
I am Ainsley's mom and the author of this blog. I am also mom to Ainsley's big sister Evie and brother Adrian. Normal life seemed busy and challenging enough before Ainsley came around in 2006. Managing the care of a medically complex special needs child is something I never imaged yet together as a family somehow we do and life is good.
Ainsley's blog was created in March 2008 in preparation for a medical trip to Cincinnati, OH. At that time it was a great way to help friends and families stay up to date on happenings. In addition it has served as a sort of diary of our experiences. There are many times that I refer back to it for information or dates of a surgery or procedure, and am reminded of forgotten details about something that happened. I've posted less in recent years and wish I had posts for some important experiences.
Over the years I've had parents contact me to say that the blog has been helpful to them in one way or another and that meant a lot to me. Like me, many parents of medically complex kids are looking for information on how best to help their child, especially in the early years. Sharing our stories helps. Although blogs are less popular these days I still find it useful. If you still enjoy blog posts I'd love it if you'd leave a comment and let me know.
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