Mar 28, 2011
Wow! A Nap CAPPED!
OMG! I had to share. Even though we are hectically packing like crazy people for the big move this news is just too big to wait! For the past year or two every few weeks or months I try to keep the cap on when Ainsley naps. Every time after about a half hour or so she wakes up. Obstructive Sleep Apnea is the term for when you obstruct, cutting off or reducing airflow, during sleep. In other words she NEEDS her trach to sleep(that is, until today). This nap was about an hour and a half long and she sleep soundly. I often take video as a means for evaluating progress. You'll see in the video that her breathing is a little loud, but it's not bad, and the more important thing is that her oxygen sats stayed up and she stayed asleep. Interestingly today I went into an in-depth explanation of why I wanted her to wear the cap while she slept and told her I'd be listening on the baby monitor and would come take it off if she was having a hard time. I don't really think that is the reason for the difference but a part of me can't help wonder at the coincidence. Of course one little nap doesn't equal a decannulation plan, but it does hint at the possibility down the road.