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About Me
- Susan
- I am Ainsley's mom and the author of this blog. I am also mom to Ainsley's big sister Evie and brother Adrian. Normal life seemed busy and challenging enough before Ainsley came around in 2006. Managing the care of a medically complex special needs child is something I never imaged yet together as a family somehow we do and life is good.
Top 10 Posts
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Lately the subject of a blenderized diet or homemade pureed formula has come up on the trach forum and we also have a friend from school... -
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Toward the end of having the spica cast Ainsley was READY to get out of it! She started lifting herself up in it and even pushed herself acr... -
Ainsley 72 hours post-surgery. There is still a fair amount of swelling. Her lids are thick. That makes it difficult to judge the outcome ... -
Eating is such a seemingly simple thing it's really hard, I think, for people to understand how it is that some people can't do it... -
We had a crummy night's sleep. Or at least I did. Steve slept on the couch so Ainsley could sleep in our bed. She has to sleep with her ... -
Well, not quite , but nearly. Hopefully. I was counting it up recently and since my 3 kids are about 3 years apart in age, and Ainsley ...
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During our many many months of speech therapy and watching Ainsley's every move for signs that she was understanding language I've n... -
It's hard to believe that exactly one year ago today we were doing this! In the trach world it's called your "decannive... -
Having 3 kids in 3 schools can be difficult to manage and by the end of the 2015-16 school year it became overwhelming. Ainsley had her ... -
All three kids went back to school today. It's always a bittersweet time. As a stay at home mom I am grateful to reclaim time to get thi...
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